12 results for tag: cancer patient


Spotlight on Patient Power: Celebrating Partnerships in Cancer

I have written many times here about my frustration when groups that are supposed to have a devotion to cancer patients as their top priority get sidetracked by egos, distrust of one another, bureaucratic procedures and turf wars. Over the years, I have seen it happen much too often. But I am happy to report some instances now when groups are working together as true partners, and I want to call them out for credit. Over the next weeks and months, Patient Power has plans to produce a number of “town meetings” for patients and care partners affected by specific cancer types. And great organizations are helping in each case.  On ...

I Am Not a Runner

It is not uncommon for households, especially households that have children, to experience health issues on a somewhat recurring basis. Let's face it, if you've got kids in school, you are going to run face first into the revolving door of cold bugs, viruses and assorted maladies. Such was the case in our typical home consisting of Mom, Dad, two daughters and two regal felines. Partly out of sarcasm and mostly out of practicality, I established an almost impossible rule for our home: only one health care crisis at a time! The rule was mostly ignored. Chicken pox, colds, flu bugs... all showed up on their schedule and couldn't care less how many were ...

Spotlight on LUNGevity: Cancer and Stress

(Editor's Note: LUNGevity is one of our esteemed partners. This leading organization has for mission to make "an immediate impact on increasing quality of life and survivorship of people with lung cancer by accelerating research into early detection and more effective treatments, as well as providing community, support, and education for all those affected by the disease.")   Stress affects all of us in one way or another. By definition, stress is a state of mental or emotional strain or tension resulting from adverse or very demanding circumstances. A new year presents new challenges for people on top of everyday stressors. ...

Success is Being a Survivor

Success means so much - its definition is reflective of the heart & soul of the perceived successor. To me – Success is not just about chasing a dream and securing it – true success is a lot deeper than pushing through a physical barrier to win the prize on the other side. I believe true success is flying in the face of danger, marching towards the fire and leaning towards the negative perception that your efforts will reap nothing or your existence is un-important. Success is proving that your hunch was right, your dream was correct and your gamble paid off – NOT because you put in resources to get back (something for yourself). ...

If medtech wants to start attaching things to my body outside of the clinic, we better talk

(This post was originally published on MedTech Views) The practice of medicine is meant to keep people well or help them get well so they can live a full, productive life. Technology provides tools toward that goal. It can help relieve pain and suffering or prevent it. But too often we get so excited about technology we lose sight of what’s really important, helping human beings live better. And when it comes to the millions of people living with chronic conditions, and now “chronic cancers”, we need to really understand their lives with an illness to know how technology can help. I am a medical journalist since the mid-80’s who was ...

Spotlight on Seattle Cancer Care Alliance: Photos From the Recent CLL Event


Spotlight on Patient Power: Let’s Have More Dialogue!

  It has become abundantly clear that patients with cancer find great value in knowing they are not alone and having active dialogue with other patients. I know it helped me back in 1996 when I was diagnosed with chronic lymphocytic leukemia and continues to help me today. But I am in a great spot in communications and get to meet other patients all the time. Many others hardly know anyone else. That’s why we are stepping up our efforts to connect Patient Power audiences with each other, per condition. We are doing this in several ways: 1. We are producing more in-person town meetings and building in extra time during these Saturday ...

Steps Towards a Productive Pharma/Patient Relationship

What would help patients become more powerful and would help pharma understand patients? First, patients need to connect with each other and support each other. Advocacy groups can help this effort but they need to adopt more aggressive digital strategies. The virtual and digital world now offers great reach at a low cost and the advocacy groups need to take advantage of this. Mobile phones can reach the most remote areas and video conferencing techniques have greatly advanced so that virtual meet-ups are easy to arrange and can offer support and help without the expense or inconvenience of travel. Industry and specifically pharma can help ...

Brain Cancer Survivor Helps Others Through Life Crises

Heidi Gottlieb is a brain cancer survivor who uses her experience as a patient and cancer survivor to guide others through their own life crises. Twenty-five years ago, Gottlieb was diagnosed with a brain tumor. Her experience with being diagnosed at a young age (29 years old) at a time when there was no internet and limited treatment options for brain cancer taught her perseverance and the importance of patient empowerment. After being misdiagnosed, enduring two grueling brain surgeries, undergoing two bouts of radiation treatment and a long re-education period where she had to relearn certain life functions such as how to swallow, Gottlieb ...

Advanced Care Planning – What to Do Now!

This is important! And often overlooked, neglected, procrastinated, or ignored...for many reasons. If you are an adult, you need to think about your future and your wishes and desires in terms of your health care. And you need to discuss these wishes and desires with those close to you. It is only by doing this that you can ensure that your choices will be heard. It is sometimes a difficult conversation to start, but those around you and close to you need to hear you. Start by thinking about quality of life, choices, and what is important to YOU. Think about who you can trust to listen to you and carry out your wishes if you are no longer capable ...