2 results for tag: breast cancer


‘Working WITH not FOR patients’

Malta, May 2017 - "Culturally we have learned to trust the doctor, it is time to start learning to trust the patient”, says Christine Bienvenu (@SuissePatiente), a three-times breast cancer survivor and Board Member at the Patient Empowerment Foundation (PEF). Christine was a keynote speaker at eHealth Week held in Malta last week and organised by HIMSS Europe, the European Commission and the World Health Organisation (WHO). At the beginning of the session ‘Working WITH not FOR patients' Christine went through her personal story as a patient and as the mother of a child with Asperger Syndrome. Not long after being diagnosed, Christine ...

“We can’t design health policies without including patient values”

Marie Ennis-O'Connor (@JBBC) got involved in patient advocacy because nobody informed her about how she could preserve her fertility while having quimiotherapy to treat her breast cancer. Today is a passionate advocate and one of the members of the Patient Empowerment Foundation Board of Trustees. She is aware of the enourmous potential that digital offers to patients and strongly believes that "the patient's input holds the key to success in healthcare". Marie publishes her insights in the blog Journeying Beyond Breast Cancer. In this interview she explains how she became a patient advocate and why she is committed to patient empowerment. &n...