Partners


Spotlight on Patient Power: Celebrating Partnerships in Cancer

I have written many times here about my frustration when groups that are supposed to have a devotion to cancer patients as their top priority get sidetracked by egos, distrust of one another, bureaucratic procedures and turf wars. Over the years, I have seen it happen much too often. But I am happy to report some instances now when groups are working together as true partners, and I want to call them out for credit. Over the next weeks and months, Patient Power has plans to produce a number of “town meetings” for patients and care partners affected by ...

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Spotlight on LUNGevity: Cancer and Stress

(Editor's Note: LUNGevity is one of our esteemed partners. This leading organization has for mission to make "an immediate impact on increasing quality of life and survivorship of people with lung cancer by accelerating research into early detection and more effective treatments, as well as providing community, support, and education for all those affected by the disease.")   Stress affects all of us in one way or another. By definition, stress is a state of mental or emotional strain or tension resulting from adverse or very demanding circumstances. A ...

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Spotlight on Seattle Cancer Care Alliance: Photos From the Recent CLL Event


Spotlight on Patient Power: Let’s Have More Dialogue!

  It has become abundantly clear that patients with cancer find great value in knowing they are not alone and having active dialogue with other patients. I know it helped me back in 1996 when I was diagnosed with chronic lymphocytic leukemia and continues to help me today. But I am in a great spot in communications and get to meet other patients all the time. Many others hardly know anyone else. That’s why we are stepping up our efforts to connect Patient Power audiences with each other, per condition. We are doing this in several ways: 1. We are ...

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Spotlight on StupidCancer: mHealth Comes to Patient Support Groups

If you are a patient and haven’t yet researched or joined a patient support community, you should. Communities exist for chronic cancer patients, chronic disease patients, rare disease patients and patients with almost any disease you can think of. Founders of these communities are often patients themselves and started the community with the thought of helping other patients through the medical and emotional maze that comes with the territory of living with a serious illness. Websites such as Ben’s Friends or HealthUnlocked are networks of different patient ...

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Spotlight on CareBrigade: How a CareBrigade Can Help You

CareBrigade was created by Florence Harvey for herself, when diagnosed 10 years ago, in a new city far from family. A CareBrigade is a Patient Advocacy Posse of friends, family, neighbors, church members and acquaintances that can be lined up right after the diagnosis, even before the Patient  knows what he/she might be needing, and that be called on at any stage of the medical journey. The CareBrigade 5 Step system ©  empowers a Patient supported by at least 2 friends or family members chosen by the Patient. To get a CareBrigade started, identify the possible ...

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Spotlight on Patient Power: Upcoming Event in Chicago, June 7th

Our partner, Patient Power, will be hosting Living Well with Myeloproliferative Neoplasms (MPNs), a live event at the Hughes Auditorium at Robert H Lurie Medical Research Center in Chicago on Saturday, June 7th. Here is a review of the event: A new understanding of Myeloproliferative Neoplasms (MPNs) is being shaped by developing research in the field. Experts are optimistic about new treatment options that are shaping up to improve, and potentially extend the lives of MPN patients. On Saturday, June 7 in Chicago, IL, Patient Power and its partner, the Robert H ...

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Spotlight on City of Hope: One Patient’s Perspective

I recently attended the MPN patient conference at City of Hope, Living Well with Myeloproliferative  Neoplasms, facilitated by Andrew Schorr. As a layperson, I often find that I am lost when it comes to understanding the science behind these diseases. The information, which was presented in a question and answer type format, was easily understood thereby providing patients with much needed answers. “Knowledge is power,” and the more we know the better we are able to manage our diseases. I found the presenters, Dr. David S Snyder and Dr. Barton Scott to be very ...

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Spotlight on Patient Power: CLL Town Meeting in Tampa, FL

I attended an extraordinary celebration this weekend. It was held in a most unusual venue – the Moffitt Cancer Center at University of South Florida in Tampa.  Celebrants came in all shapes, sizes and ages.  This wasn’t a family event.  Participants weren’t related by blood.  Or were they? In fact, everyone in the room was connected by blood.  At least half the attendees, including me, are CLLers.  We have chronic lymphocytic leukemia.  And we came to Tampa to attend a CLL town hall meeting, organized and hosted by Patient Power as a service of the ...

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Spotlight On Imerman Angels: One-on-One Cancer Care

“I've been there. I beat it. And so will you," says Jonny Imerman, cancer survivor and founder of Imerman Angels, a cancer support group that matches cancer survivors to cancer patients on a one-to-one basis. Diagnosed with testicular cancer when he was 26 years old, Imerman quickly learned that newly diagnosed cancer patients feel alone and afraid, and that support is key to improving mental and physical health. Started in 2006, Imerman Angels now has a roster of over 6,000 cancer survivor mentors and caregivers. Over 400 different types of cancer are represented. ...

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