3 results for author: Teresa Bau


‘Working WITH not FOR patients’

Malta, May 2017 - "Culturally we have learned to trust the doctor, it is time to start learning to trust the patient”, says Christine Bienvenu (@SuissePatiente), a three-times breast cancer survivor and Board Member at the Patient Empowerment Foundation (PEF). Christine was a keynote speaker at eHealth Week held in Malta last week and organised by HIMSS Europe, the European Commission and the World Health Organisation (WHO). At the beginning of the session ‘Working WITH not FOR patients' Christine went through her personal story as a patient and as the mother of a child with Asperger Syndrome. Not long after being diagnosed, Christine ...

Precision Medicine for Me Aims to Give All US Lung Cancer Patients Access to Next-Generation Tumor Testing

Unique collaboration announces new program to tackle inequality in cancer care   “Precision medicine with personalized outcomes is the future, and getting this information and access into the hands of patients now could give them years of good living,” said patient advocate Janet Freeman-Daily   A unique consortium of patient organizations, advocates, startups, and leaders in the pharmaceutical industry today announced the launch of Precision Medicine for Me, a program dedicated to providing support to patients who want access to the best possible information and services related to precision medicine. Precision Medicine ...

What Do Patients Want From Pharma?

That is the question that some of the ePatients invited to the Eyeforpharma conference that took place in Barclelona from March 24th to 26th answered while hundreds of executives from the pharmaceutical industry were present. The conference had sessions dedicated to patients (Patient Engagement Track), that featured ePatients like the Founder of Patient Power and two time cancer survivor, Andrew Schorr (@andrewschorr) and his wife, Esther, Jack Whelan (@jackwhelan), diagnosed with a rare type of blood cancer (Waldenstrom Macroglobulinemia), Nuria Zuniga (@tulupus), a lupus patient, Mike Young (@elgringoinspain), a type 1 diabetic, Juan Fuertes ...