4 results for author: PEFAdmin


Patient Empowerment Foundation partners with HIMSS to join efforts in empowering patients with technology

e-Patient Christine Bienvenu will be a Keynote speaker at HIMSS eHealth Week The Patient Empowerment Foundation (PEF) and HIMSS have signed a partnership agreement with the goal to empower patients to achieve better care with the help of technology. HIMSS is a global not-for-profit organization focused on better health through information technology (IT). Both organizations will join efforts to promote patient empowerment and to improve the visibility of their work. Patient Empowerment Foundation Board of Trustees member, Christine Bienvenu (@SuissePatiente), a breast cancer patient and social media specialist, will be a Keynote speaker at HIMSS ...

“We can’t design health policies without including patient values”

Marie Ennis-O'Connor (@JBBC) got involved in patient advocacy because nobody informed her about how she could preserve her fertility while having quimiotherapy to treat her breast cancer. Today is a passionate advocate and one of the members of the Patient Empowerment Foundation Board of Trustees. She is aware of the enourmous potential that digital offers to patients and strongly believes that "the patient's input holds the key to success in healthcare". Marie publishes her insights in the blog Journeying Beyond Breast Cancer. In this interview she explains how she became a patient advocate and why she is committed to patient empowerment. &n...

My patient experience for the Patient Empowerment Foundation – Christine Bienvenu

In hindsight, I can honestly say that my ePatient advocacy started in 2008, when my eldest son was diagnosed with Asperger's Syndrome. With Switzerland rather behind (at the time) in its knowledge about - and treatment of - Asperger’s, I could only find information and communities online that was based in North America. With absolutely nothing like it available here in Switzerland, I decided to create an online platform; today, we are some 300 members who care, share, and support. Our son is thriving in the mainstream schooling system, thanks to our advocating, as parents, for him. In 2010, my world imploded when four words were uttered: “Tri...

Leveraging Technology to Engage Patients

Significant progress is being made in a number of cancers and serious chronic illnesses. In many areas scientists and clinicians are excited about what is emerging for patients and what may soon lie ahead. Patients and family members want that information. It gives them hope. And they don’t want to feel alone. But too often in European countries and many others patients ARE alone. It doesn’t have to be that way. Today’s communication’s technologies and developing improvements can quickly build patient communities and help patients have the right information at the right time. Clearly, it leads to better care and more peace of mind. Unfort...